5.02.09 [12 days old]

Ethan had a great first day at kinder. It was only a short session to start with, but he loved it, and he's back again this afternoon, and looking forward to that. He's 4 today!! Happy birthday my big boy. He had a family party on Saturday at my sisters house, and so tonight we're just having birthday cake after dinner, and a few neighbours are popping in for cake.

Liam's enjoying grade 1, although he's been a bit nervous in the mornings. He's settling in well once he's there and found some friends.

Amelia: We went up to visit her last night as soon as Brett got home from work. She's just so beautiful. I really, really needed to just hold her and touch her. I missed her so much. I held her till I couldn't keep my eyes open anymore and then we headed home. I crashed into bed the second I walked in the door and then slept through my alarm (and Brett's alarm too) this morning. Woke just in time to get Liam ready and off to school. Amelia had one episode of SVT overnight, but thankfully it was short (about 20 seconds) and then she came out of it on her own. I think I mentioned yesterday that her drugs had been increased. Her nurse last night said it could take months to get her drugs right :( I'm trying not to look too far into the future at the moment. Will download some pics and try and get them up here today.

PM update: She had another SVT at 9.20am (obviously RCH are not going to call me when she has them!) She had to be given adenosine again to bring her out of it. She's now on 3ml of Propanalol (was on 1ml initially then 2ml). If she has another one overnight she'll be put on a different drug tomorrow (satalol?)