Well my little girl has SVT (Supraventricular tachycardia). Basically the electrical impulses in her heart go a little nuts sometimes. There's no trigger for it for her, and not always any signs that it's going on. She has to go onto beta blocking meds, which will reduce her heart rate all the time, and hopefully prevent it happening. We had to buy a stethescope, and every time we change her nappy or at any time she looks 'different' check her heart. Ice her if needed and call Royal Childrens.... well that's what we've been told so far anyway. Do you think I'm going to sleep AT ALL from now on? This is my third baby. I was supposed to be so relaxed and enjoy her so much. And now I'm just freaking scared! Around 12 months of age they can sometimes start to wean off meds. I can not tell you how much I hope and pray that it's something she will grow out of. It's not related to being prem.
On the up side today she had her first breast feed. If she's been well enough to handle lately we've been trying to get her to latch on, while she's tube fed. She never sucks though. Today the nurse asked if we should weigh her first (so they can see how much she drinks) and we said 'nah, she won't drink'. Well what do you know, she went on and sucked for about 20 minutes (out of about 30mins she was on). So proud of her. I am so in love with her. She's every thing I dreamed of. I hate that she's not here with me, that she's not well. I know it's not the worst thing in the world, and I'm probably feeling it worse at the moment because I'm feeling a bit emotionally drained and exhausted.
She's still at RCH and will be while they work out her meds, and then will hopefully be sent back to Frankston.
On the up side today she had her first breast feed. If she's been well enough to handle lately we've been trying to get her to latch on, while she's tube fed. She never sucks though. Today the nurse asked if we should weigh her first (so they can see how much she drinks) and we said 'nah, she won't drink'. Well what do you know, she went on and sucked for about 20 minutes (out of about 30mins she was on). So proud of her. I am so in love with her. She's every thing I dreamed of. I hate that she's not here with me, that she's not well. I know it's not the worst thing in the world, and I'm probably feeling it worse at the moment because I'm feeling a bit emotionally drained and exhausted.
She's still at RCH and will be while they work out her meds, and then will hopefully be sent back to Frankston.
5 comments:
Katie - I am thinking of you all the time and hoping things are going well for you and the family. Best wishes Kim
Just wanted to let you know your all in my thoughts and prayers, especially little Miss Amelia.
Big hugs
Nic xxx
At least they know what is wrong now Katie i am sure a bit of a relief and no more guessing..But still so hard at the same time..
Poor little bubba, so not fair to have to go through this in her first week of life...
Thinking of you all and lets hope and pray she is back at Frankston soon..
Big hugs to all.
SARAH
xoxoxox
so happy to hear things are being sorted out and she'll be back at frankston soon!
Oh Katie, what a road you are traveling. I just wanted to let you know that I have (or had -depends on who you ask) SVT. Mine came out in puberty though, only having a few episodes earlier before then. I know how scary it can be for you and her. I had an 'operation' to fix mine about 15 years ago and have never looked back. If you ever want to talk about it or have questions etc, I am only an email (or call) away. Sending hugs to you and piles of strength too. x Janelle
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